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About the Canadian Spondyloarthritis Association

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Who We Are

You are not alone! 

The Canadian Spondyloarthritis Association (CSA) is a national association created to support people living with Spondyloarthritis (SpA), including ankylosing spondylitis (AS), psoriatic arthritis (PsA), enteropathic arthritis, juvenile idiopathic arthritis, and associated spondyloarthritis diseases.

A patient-led advocacy and education organization, we partner with patients, caregivers, and the broader medical community to connect fellow SpA patients with evidence-based information and resources throughout their whole-life health journey. 

As vocal thought leaders and change agents, we are dedicated to making the patient journey better. We are actively working to eliminate the despair and frustration that comes with waiting years for a proper diagnosis. We are the only organization focused solely on Canadians living with Spondyloarthritis.

We are a patient-led advocacy and education organization, partnering with patients, caregivers, and the medical community to connect patients with evidence-based information and resources throughout their journey with Spondyloarthritis. 

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The knowledge and experience of our leadership and medical advisory board empowers patients to seek a diagnosis, make informed decisions about treatment, and live a better life. 

The CSA was founded as the Canadian Spondylitis Association in 2005 by Dr. Robert Inman, a prominent Canadian rheumatologist, who saw the need for SpA patients to have a unified, national voice. CSA was incorporated as a non-profit organization in 2008, and Registered Charity in 2021.

In 2023, the Canadian Spondylitis Association changed its name to the Canadian Spondyloarthritis Association to reflect the global shift in terminology towards the use of Spondyloarthritis and to be inclusive of  those who live with axSpA/AS as well as those who have other SpA conditions outside of axSpA/AS. 

Vision: All people living with Spondyloarthritis can achieve their full health potential and live a better life.

Mission: To be the leading voice for the Spondyloarthritis community in Canada, educating, supporting and advocating for people living with Spondyloarthritis.

What We Do


Together with patients, healthcare professionals and caregivers, Canadian Spondyloarthritis Association is driven to help all who are affected by Spondyloarthritis (SpA) and their families by adhering to the following goals :

Education & Information
  • Teaching SpA patients and their families to understand and manage their symptoms to reduce the impact of SpA on their lives
  • Providing evidence-based information and resources to empower patients to make informed decisions about treatment options.
  • Providing education and resources to healthcare professionals involved in the diagnosis and treatment of Canadians living with SpA.
Awareness
Advocacy
  • Representing the voice of SpA patients on national and international stages, including advocating for equitable access to treatment and care for all Canadians.
  • Fostering a strong and vibrant community where people affected by SpA can learn, share their experiences and support one another.
  • Equipping SpA patients to advocate for their own optimal healthcare.
Support
  • Helping fellow SpA patients live well and feel seen and heard by finding solutions rooted in a shared understanding of lived experiences.
  • Guiding patients on all stages of their treatment journey, promoting early diagnosis and treatment. 

Our Board of Directors

Erika Headshot

Secretary

BC

Anthony's Headshot

Director

Ontario

Moataz' Headshot

Vice-Chair

Ontario

Elie Karam's Headshot

Chair

Québec

Director

BC

Kim Headshot

Treasurer

Alberta

Caitlin Headshot

Director

Ontario

Our Team

Brenda_Headshot

Brenda Delodder
Executive Director
Ontario

Brenda_Headshot

Robyn Dmytrow
Director, Development & Engagement
Ontario

Brenda_Headshot

Dan Goulet
IT & Support Manager
Ontario

Brenda_Headshot

Antoinette Carlucci
Communications Manager
Québec

Brenda_Headshot

Rodolphe Vito
French Content Specialist
Québec

Brenda_Headshot

Mandy Costache
Fundraising Ambassador
Alberta

Brenda_Headshot

Michael Santillo
Fundraising Ambassador
Québec

Brenda_Headshot

Susan Ross
Volunteer Manager
Québec

Brenda_Headshot

Magalie El-Khoury
Ambassador, Special Projects
Ontario

Our Partners

The Canadian Spondyloarthritis Association (CSA) is proud to recognize our corporate partners who are instrumental in providing support to the CSA in order that we may continue to educate and advocate for our spondyloarthritis community.

Abbvie Logo
Amgen Logo
Janssen Logo
Organon
Pfizer Logo
Novartis Logo
UCB logo

Our Community Partners

The Canadian Spondyloarthritis Association (CSA)  is grateful to be community partners with the following organizations:

ACE Logo
ARC Logo
Arthritis Society
ASIF Logo
AHPA Logo
CAPA Logo
CPN Logo
Capp Logo
MedicAlert Canada Logo
MCC Logo
sparcc logo
MCC Logo

Support CSA

If you believe in supporting Canadian spondyloarthritis patients and those who care for them, and you are ready to make a difference, you can get involved by: